Dementia? Yes, but best day ever!

Ok, two posts in one day, but I just can’t wait to write.  My mom had 2 doctor appointments today, and earlier I had talked with my sister briefly about how the day had gone.  My sister didn’t even want to talk about the actual appointments, she just wanted to talk about the personal strides in Mom she saw.   After talking with her, I hung up the phone, and called my Mom.  I wanted some of that.

She was energetic on the phone and talkative as she offered all kinds of info.  “The doctors couldn’t find anything wrong with me, so I guess I’m ok”.  “We went out to lunch, and were gone all day.”  “Just got back in time for my dinner”.    “There was a new woman admitted today, and they asked me to talk to her”.   “They asked me if I could sew; so I spent 3 hours sewing yesterday”.    What???  Wait?  What?    Who are you, and what did you do with my mother?  (I know I’ve said that before in a post, but hey, seriously, we are trying to figure out who this woman is).

So, yes indeed, a new resident was moving into her facility today.  The woman — and her daughter — were very distraught.  The mother was evidently crying, and when the Facility Director saw Mom walking in the hallway, she asked her to come talk with them.  Wow, bold move, Miss Facility Director!   But I guess Mom told her frankly that in the beginning she was very very angry.  And stayed that way for about a week.  But then things got better and, “I’m ok now”.    I just started crying when Mom told me that story.   Mom told me that she has good days and bad days, but she’s weighed it out in her head, and its ok.  “I probably do more things and am busier here than I was at my old apartment”.  Wow.

And yes, she did do some sewing for three hours yesterday.  Mom is an expert seamstress.  She had an upholstery shop in our home; also did some tailoring.  That facility found a gem.  I’m sure they will keep her busy with all sorts of projects now that they know what she can do.   They are evidently having a luau this weekend, and had Mom sew tablecloths, napkins, etc. to get ready.

And Bingo.  Mom is loving bingo.  Evidently they win play money.  Mom loves a competition.  And every few days, they set up a market with toiletries, etc., and the winners can spend their money on those items.  It’s a win win situation.

I am amazed.

Everything Mom told me lined up exactly with what my sister had said.

Mom did tell me some things 3 times, (smile), but I’m ok with that.   Yes I am.  Glad you’re back, Mom.  I’ve missed you.

Best day ever.

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Maybe That’s Why She’s Quiet… I hate Dementia

Mom continues to gain strength, and has actually gained around 15 pounds as near as I can tell.   Over the last several weeks, when asked about her weight, Mom would reply that she weighed 112 or 127 or 119 — all within the same conversation!  My sister and I were concerned because Mom’s weight is relevant due to her Congestive Heart Failure.  My sis has since bought a small dry erase marker board which sits right by the bathroom scale.  Mom’s daily journal seems to confirm the 127, give or take a pound each day.

However, it is complicated because now that the Hyperthyroidism is under control, of course, she is gaining weight.  Her appetite is back, and she is eating well again.   I try not to take offense to “the eating well again” comment when my sister says it.  Hey!  I was feeding her well when she lived here.   But, seriously, 85% of the time Mom was with me, she was a very sick woman.  And with the thyroid out of control, it didn’t seem to matter what she ate, she still lost weight.  I haven’t opened any of Mom’s cupboards in the new apartment, but my sister says she tends to gravitate to the candy aisle whenever they are out shopping.  That, too, could be responsible for a few extra pounds.  She also has dessert choices at every meal in the dining room — she does love her some lemon pie!  That’s okay, eat whatever you want, Mom.   At 84, some habits are just not going to change.

Since I posted last, I have seen Mom a couple of times.  She has been fairly reserved and quiet.  She will talk when asked direct questions, but she rarely begins any conversation herself.  I think that is the biggest personality change I see.  She doesn’t seem mad anymore, just not herself.

I hate dementia.  What an awful disease.  There she is right in front of me.   But where is SHE really?  Like many other daughters around me, I have cried myself sick over my mother.  (The hour and half drive home serves me well that way.)  Grieving…

Our family worked like crazy over the last year to get Mom healthy again.  We fought the doctors at every turn when they gave up.  And we were right when we said,  ‘something isn’t right; you are missing something’.   After eight months, the doctors landed on the correct diagnosis, and here we are two and half months later, Mom is certainly healthier — she has gained back strength, stamina, and weight.  She looks good.  But, I can’t help but think all that havoc on her body accelerated the dementia.  She is a different woman than she was — even 9 months ago.  Sure, we saw the signs, and we knew things we a bit amiss, but the rate at which her mind has stopped playing nicely is alarming to me.  And it grieves me.

I think it grieves her too.

Does she hear the repetition?  I know she hears the repeating stories in some of her fellow residents, and it drives her crazy.  (smile)  Yes, that does make all of us kind of snicker.  Oh, Mom…

Does she know she is confused?

I think she knows.  And it probably scares her death.

Maybe that’s why she’s quiet.  The less she talks the less she reveals to us … and to herself.

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